A Rare Public Health Challenge
Most public health challenges may seem obvious. The COVID-19 pandemic, for example, swept the globe and in some way touched the lives of everyone. But
Complementary Medicine for LAM and Beyond
Our long-awaited attendance at our first LAMposium was truly an experience to remember. Being a loved one of a woman with LAM and a physical
LAMposium in your Living Room recording is now available
Thank you for your interest in our recent LAMposium in Your Living Room (LYLR) educational webinar, “Henske & Hammes Research Report: Highlights from the 2022
I couldn’t “fix” LAM, so I’m raising money for those who can
In November 2020, my 24-year-old daughter Kristin was diagnosed with LAM. As a mother, I’m used to fixing problems for my children. But this was
Where there once was fear, there is now hope
In 2020, Meagan Knight was a young newlywed, working as a nurse in a hospital COVID-19 unit when her lungs collapsed. No, it wasn’t COVID-19.
Fighting for a LAM Diagnosis and Now a Cure
For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started
Life with LAM
Trust & Estate Administrator | Retired, Falls Church, VA Age: 64 | Diagnosed at age: 45 “Living with LAM has been an interesting journey! Although not
Life with LAM
Marketing Professional | Founder, Accessible Itineraries | Certified Professional Coach, Brooklyn, New York Age: 42 | Diagnosed at age: 30 “I was diagnosed with LAM six
Life with LAM
Stay at Home Mom, Newcastle, NSW Australia Age: 39 | Diagnosed at age: 26 “Being diagnosed at the age of 26 was very mentally challenging for
How a LAM diagnosis changed a 17-year-old’s life
When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was
How a LAM Patient Became a Scientist to Help Find a Cure
Beth Daugherity had been suffering lung and breathing issues for years. After a lung collapse and months of pain, she consulted several doctors to figure
Sirolimus Gave Stephanie a Second Chance
Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a