Video Library

LAM clinic directors answer questions asked by regional LAM patient liaisons on sirolimus, traveling, PFTs, VEGF-Ds, Covid-19, and more.

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Please join us for an informative presentation by our Seattle LAM Clinic Director, Dr. George Pappas. As a follow-up to his standout session at the 2022 International LAM Research Conference & LAMposium, Dr. Pappas discusses the ins and outs of pulmonary function tests (PFTs)—what the many numbers mean, which ones are most closely followed in LAM, and how the numbers can be used to understand your lung health and to measure disease progression over time.

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This LAMposium in Your Living Room educational session, “The LAM Foundation: Together We RISE” by Sue Sherman, Executive Director and CEO of The LAM Foundation, was recorded on April 6, 2022, at 7:00 PM ET.

Sue Sherman, Executive Director and CEO of The LAM Foundation, will discuss of the Foundation’s investments in new research, innovation, support services, and empowerment of our collective LAM community. With input from patients, family members, scientists, clinicians, and partners, the Foundation continues to meet new challenges and direct resources to the most promising mission-driven programs.

We are looking forward to a dynamic new year with the return of the in-person 2022 International LAM Research Conference & LAMposium and want to share our plans with you.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium in Your Living Room educational session, “Hormones, Research, & the Pandemic: Your Questions Answered” by Stephen Hammes, MD, PhD and Nishant Gupta, MD was recorded on January 2, 2022, at 7:00 PM ET.

Listen as Dr. Hammes discusses his research regarding estrogen and LAM, focusing on the potential role of the uterus as the source of LAM cells in the lungs. He also addresses questions related to hormones, women’s health, and LAM. Dr. Gupta provides an update on the current COVID-19 developments that are most relevant to the LAM community. In addition, he discusses some of the other recent exciting advancements in LAM science.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium In Your Living Room educational session, “Exercise & LAM: What Do We Know Now?” by Mary Beth Brown, PT, PhD was recorded on December 1, 2021, at 7:00 PM ET.

We all know that exercise is good for us. But how good? Listen to Mary Beth Brown, PT, PhD, as she discusses the findings of her recently concluded exercise study, what it taught us about exercise and LAM, blood oxygen levels, and the benefits of a home-based exercise program for individuals living with LAM.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium In Your Living Room educational session, by Daniel Dilling, MD and Kay Blankenship, MPC, LCPC was recorded on Wednesday, October 13, 2021 at 7:00 PM ET.

Part II: Lung Transplantation in the Time of COVID-19. One Year Later.
How has the pandemic impacted lung transplantation and clinic care? The medical director of our Circle of Hope Transplant Support Program (COH) and LAM clinic director, Dr. Daniel Dilling, offers this insightful presentation. Dr. Dilling will also answer some of our most pressing questions regarding lung transplant and the coronavirus.

Fear, Grief, Loss & Resiliency: The Impact of the Pandemic on Our Emotional Health
Kay Blankenship, MPC, LCPC, will explore the impact that COVID-19 has had on our lives, relationships, and mental health. We will learn about the grief process, loss, coping skills, and ways to promote self-care.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium In Your Living Room educational session, “Supplemental Oxygen: Understanding and Optimizing Resources and Systems to Fit Your Needs" by Susan Jacobs, MS, RN was recorded on June 2, 2021 at 7:00 PM ET.

This presentation will provide an overview of oxygen basics, assessing the need for oxygen, what to expect from your provider, integrating oxygen into your fitness routine, and future trends in oxygen reimbursement and access.

This session will also highlight the patient experience and offer a demonstration and review of various oxygen systems.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium In Your Living Room educational session, “How to Best Integrate the LAM Clinic Network in Your Care” by Dr. Nishant Gupta was recorded on Wednesday, December 2, 2020 at 7:00 PM ET.

Listen to Dr. Nishant Gupta, Medical Director of the LAM Clinic Network, as he describes the clinic network, outlines its central role in driving high quality care and fostering collaborative research in LAM and other rare lung diseases, and discusses best practices to maximize the value of LAM clinics in your overall care.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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