PATIENT VOICE COMMITTEE
We are honored to celebrate the three extraordinary women who serve alongside our scientific leadership as members of our Patient Voice Committee. Their willingness to share their lived experiences and perspectives in reviewing research grant proposals marks an important step forward in ensuring that the patient voice is meaningfully represented in our research efforts.
Liz Eves
“While advancing treatment is critical, research should also reflect the priorities and lived experiences of patients. I’m grateful for the opportunity to serve and to help ensure that patient perspectives meaningfully guide research toward outcomes that truly matter for the LAM community.”
Bio: Liz Eves is based in Salt Lake City, Utah, and was diagnosed with LAM in 2020. She is a mother of three and is deeply committed to serving her community through volunteer work and local outreach. She has engaged in rare disease advocacy, including Rare Disease Week on Capitol Hill, and values opportunities to support and connect with other women living with LAM. Liz is honored to serve on The LAM Foundation’s Patient Voice Committee and to contribute to its mission.
Ali Morris
“It is a privilege to use my voice and lived experience to advocate for the LAM community—bringing patient priorities into closer alignment with research and helping shape a future defined by hope, peace, and meaningful progress.”
Bio: Ali Morris, PharmD, is a pharmacist currently serving as a Pharmacy Business Manager at a health system in Ohio. Prior to this role, she practiced as an oncology clinical pharmacist, collaborating with interdisciplinary teams to manage complex therapies and support patients through clinical trials. Following her LAM diagnosis in 2022, Ali’s commitment to helping others evolved from a professional calling into a deeply personal passion. Guided by her lived experience, alongside her clinical and leadership expertise, she is dedicated to advancing patient-centered research and amplifying the patient voice within the LAM community.
Maria Clara Castellões
“I aim to translate LAM patient experiences into actionable, patient-centered insights, ensuring research funding prioritizes what matters most to the community.”
Bio: Maria Clara Castellões, PhD, is the President of the Brazilian LAM Patients Association (Alambra). As a researcher in Translation Studies, she combines academic expertise with patient advocacy, working to strengthen the connection between scientific knowledge and the LAM patient community.