The LAM Foundation is proud to celebrate the publication of new research from Mary Beth Brown, PT, PhD, and her collaborators, including Dr. Claire Child, at the University of Washington.

This research is in response to a need identified at The LAM Foundation’s 2017 LAM Patient Benefit Conference in Los Angeles where patients, researchers, and clinicians came together to identify the questions that mattered most to people living with LAM. Fatigue was noted as a significant impact on quality of life and researchers heard the call to action.

In response, Dr. Brown questioned: Could changes in skeletal muscle help explain the increased fatigue experienced by people with LAM?

That patient-driven question became incorporated into Dr. Brown’s Exercise and Fatigue Study, supported initially by funding from The LAM Foundation. The newly published paper focuses on the study’s work to better understand skeletal muscle and its possible role in fatigue.

We are especially grateful to the LAM patients who participated in the research, shared their experiences, and helped move this work forward. We are grateful to Dr. Brown, Dr. Child, and their collaborators for following a question that came directly from the LAM community. And we are thankful to University of Washington pathologist Dr. Gonzalez-Cuyar, who volunteered his expertise and generously provided the funding needed to make the article fully open access.

The LAM Foundation is honored to have played a part in bringing this research from patient questions to scientific discovery. Your support allows for questions to inspire research and for that research to provide the answers and insights towards our shared mission.

To access the paper published in the journal LUNG, click here.

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