Taking the LAM Conversation Further: Celebrating Dr. Lyndsay Hoy

September 30, 2026 By The LAM Foundation Staff

There is something powerful about seeing the voice of the LAM community carried into rooms where LAM has never been part of the conversation before.

That is exactly what Dr. Lyndsay Hoy has been doing.

Through LAM-PREP, the LAM Patient Research Priorities Survey, women living with LAM and their loved ones helped identify the issues that matter most to them. The findings have shed light on significant gaps in care, including delays in diagnosis and the challenges women face navigating a healthcare system that is often fragmented. More than simply documenting those challenges, LAM-PREP has created an opportunity to ask what comes next.

AMWA executive and Board leadership with TLF Vice Chair, Dr. Lyndsay Hoy at the FMWC gala.

As Dr. Hoy puts it, “LAM-PREP showed us where the gaps and opportunities are.”

At the Federation of Medical Women of Canada meeting in Edmonton, Dr. Lyndsay Hoy spoke about how LAM can help us think more broadly about rare disease care across a woman’s lifespan. For women living with LAM, important healthcare decisions can intersect with fertility, pregnancy, contraception, menopause, and other hormonal and life-stage transitions. Too often, care can become fragmented as women move between specialists and healthcare settings.

Dr. Lyndsay Hoy recently spoke about how LAM can help us think more broadly about rare disease care across a woman’s lifespan especially at life stage/hormonal transitions and where care can become fragmented.

She shared that perspective from the podium in Edmonton and presented a poster abstract on the topic, bringing the experiences of women with LAM into a larger conversation among women physicians and healthcare leaders.

That conversation continued in Chicago at the Women in Medicine 2026 conference, where Dr. Hoy presented two additional poster abstracts. One focused on LAM-PREP, highlighting inequities such as diagnostic delays and the challenges women face navigating care. The other explored integrated care and what it could look like to build a more connected approach to women’s health.

Dr. Lyndsay Hoy, Vice Chair, Strategy and Mission, The LAM Foundation Board of Directors, and Dr. Eliza Chin, Executive Director, American Medical Women’s Association, at the Federation of Medical Women of Canada (FMWC) and Medical Women’s International Association (MWIA) North American conference poster hall. Dr. Hoy presented on Patient Priorities and Equity Gaps in Lymphangioleiomyomatosis.

Together, the work represents an important progression: LAM-PREP helped us understand where the gaps are. Now we need to find the solutions.

The lessons learned from women living with LAM are relevant beyond one rare disease. They can help inform how clinicians think about women’s health, how healthcare systems connect care across specialties, and how we listen to patients whose diseases do not fit neatly into traditional healthcare pathways.

Her growing partnership with the American Medical Women’s Association and Dr. Eliza Chin is another important part of that work, creating opportunities to shine an even brighter light on LAM within the broader conversations around women’s health and rare disease care.

And that work is being recognized by others. At the Women in Medicine 2026 gala in Chicago, Dr. Hoy was honored as the 2026 Posters Awardee.

We are incredibly proud to celebrate Dr. Lyndsay Hoy, not only for these recent accomplishments and well-deserved accolades, but for the doors she is opening for the entire LAM community.