During Worldwide LAM Awareness Month, we celebrate those who bring our community together through their stories, talents, and advocacy. Jaclyn Janis is an artist, nurse,

“At my first LAMposium, I met incredible people,” Eden shared. “Patients, families, doctors, researchers, and board members were all coming together to help the community

When people come together to support a cause they care about, amazing things can happen. That is exactly what Holly VanNeste did when she organized

Sirolimus stabilizes lung function in most patients with LAM, and even appears to reduce the incidence of pneumothorax, but lung collapses still sometimes occur in

Dr. Justin Hewlett often finds himself in awe of the LAM community, but one patient stands out. A woman living with LAM who refused to

When you first meet Valerie Jahn, you might notice her bright smile and inviting energy. What you might not guess right away is that she

Cycling is a mix of disciplines: mountain, road, BMX, cross country, downhill, touring, fat tire, tandem, leisure/urban, cycle cross, and the latest new thing, gravel.

We are honored to celebrate the three extraordinary women who will serve as members of the first Patient Voice Committee. Their willingness to share their

For more than 14 years, Dr. Misbah Baqir has cared for people living with LAM. Her connection to the LAM community began early in her

Thanks to the amazing support from the LAM community and participation in a research survey conducted by the University of Washington, results from a study

Kate Racoff Musgrove, PhD was one of eleven LAM advocates who traveled to Washington, DC for Rare Disease Week, February 23–28. As a woman living

For Dr. Matthew Koslow, caring for people with LAM is more than a job. It is a mission that has shaped his career, his family