From Patient Priorities to International Recognition: LAM-PREP Findings Take the Global Stage
The LAM community has always understood something powerful: the people living with this disease are essential partners in advancing research. Today, we are proud to
Leading with Compassion: Dr. Daniel Dilling’s Commitment to the LAM Community
Dr. Daniel F. Dilling has spent his career helping people with rare lung disease feel seen, supported, and cared for. He is a highly trained
Finding Beauty Through Challenge: How Jaclyn Janis Embodies Cure Through Connection
During Worldwide LAM Awareness Month, we celebrate those who bring our community together through their stories, talents, and advocacy. Jaclyn Janis is an artist, nurse,
The Magic of Matching Gifts: Turning one gift into two for The LAM Foundation
“At my first LAMposium, I met incredible people,” Eden shared. “Patients, families, doctors, researchers, and board members were all coming together to help the community
One Simple Fundraiser Can Make a Big Difference for LAM
When people come together to support a cause they care about, amazing things can happen. That is exactly what Holly VanNeste did when she organized
Your Gift Brings Us Closer to Improved Treatment for Pneumothorax
Sirolimus stabilizes lung function in most patients with LAM, and even appears to reduce the incidence of pneumothorax, but lung collapses still sometimes occur in
Meet Dr. Justin Hewlett: Inspired by Strength of the LAM Community
Dr. Justin Hewlett often finds himself in awe of the LAM community, but one patient stands out. A woman living with LAM who refused to
Raising the Barre – A Lammie’s story of resilience
When you first meet Valerie Jahn, you might notice her bright smile and inviting energy. What you might not guess right away is that she
Why I ride the Million Dollar Bike Ride
Cycling is a mix of disciplines: mountain, road, BMX, cross country, downhill, touring, fat tire, tandem, leisure/urban, cycle cross, and the latest new thing, gravel.
Meet the Inaugural Patient Voice Committee Members
We are honored to celebrate the three extraordinary women who will serve as members of the first Patient Voice Committee. Their willingness to share their
Advancing Care Through Connection: Dr. Misbah Baqir’s Impact on the LAM Community
For more than 14 years, Dr. Misbah Baqir has cared for people living with LAM. Her connection to the LAM community began early in her
New Research Shows Urine Leakage is a Common Symptom in Those with LAM
Thanks to the amazing support from the LAM community and participation in a research survey conducted by the University of Washington, results from a study