Video Library

Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation

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LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up-to-date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

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Please join us for an informative presentation by our Seattle LAM Clinic Director, Dr. George Pappas. As a follow-up to his standout session at the 2022 International LAM Research Conference & LAMposium, Dr. Pappas discusses the ins and outs of pulmonary function tests (PFTs)—what the many numbers mean, which ones are most closely followed in LAM, and how the numbers can be used to understand your lung health and to measure disease progression over time.

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This LAMposium In Your Living Room educational session, “How to Best Integrate the LAM Clinic Network in Your Care” by Dr. Nishant Gupta was recorded on Wednesday, December 2, 2020 at 7:00 PM ET.

Listen to Dr. Nishant Gupta, Medical Director of the LAM Clinic Network, as he describes the clinic network, outlines its central role in driving high quality care and fostering collaborative research in LAM and other rare lung diseases, and discusses best practices to maximize the value of LAM clinics in your overall care.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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This LAMposium In Your Living Room educational session, “From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM” by Dr. Charlie Strange was recorded on October 7, 2020 at 7:00 PM ET.

Dr. Charlie Strange, LAM Clinic Director at the Medical University at South Carolina, discusses what is often a patient’s first painful experience with LAM—pneumothorax. This informative session titled, "From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM" will also explore chylothorax and surgical interventions such as angiomyolipoma resection and lung transplantation.

If you have any questions or need additional information after viewing this program, please email patientservices@thelamfoundation.org or call the office at 513-777-6889.

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Susan Jacobs provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

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Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.

Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.

00:02:42 Pelvic Floor Overview
00:16:15 Pelvic Floor and LAM Research
00:34:30 What Can You Do?
01:01:00 Q&A Session

Click this link to download a handout for your pelvic floor therapist: https://www.thelamfoundation.org/wp-content/uploads/2024/12/LAM-letter-to-potential-Pelvic-Floor-Therapists.pdf

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