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Featured Article

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Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources

Recent Articles

Zooming into What Matters Thumbnail 1.png

Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources
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Join Us for a COVID-19 Vaccine Update Town Hall on April 20

Posted on April 12, 2021   |   

The LAM Foundation has partnered with the Tuberous Sclerosis Alliance to host a Virtual COVID Vaccine Update Town Hall on Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT.

Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM

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Topics: COVID-19        Categories: Events
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Finding our New Normal: The Rise of Telemedicine for LAM

Posted on April 09, 2021   |   

Telemedicine – the use of video technology to offer “virtual visits” as a substitute for conventional face-to-face visits – has been available for over a decade. However, its use was limited because neither government nor commercial insurers provided reimbursement for telemedicine visits. As a result, only a handful of health systems offered this option, and patients choosing this option often had to pay out of pocket. The COVID-19 pandemic has accelerated the widespread implementation of

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Topics: COVID-19 Telemedicine        Categories: Educational Resources
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Navigating Emotional Complexity During a Pandemic

Posted on April 08, 2021   |   
Author: Sharon Young

I have always loved a good adventure. Part of it is the challenge. Part of it is the spirit of discovery. Part of it is the adrenaline rush. And part of it is, or at least was, a sense of reckless abandon. Ahhh, the intoxicating invincibility of youth! And what a rude awakening it was when the world reminded the not-so-invincible me that I was a mere mortal after all.     

For me, it was specific experiences, such as getting lost in the woods with the last light fading or fighting an

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Topics: COVID-19        Categories: Patient Profiles
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Endowed Professorship for LAM Research Created at UC College of Medicine

Posted on March 17, 2021   |   

Gifts totaling $1 million will support a new LAM Foundation Professorship for LAM Research, a first at the University of Cincinnati College of Medicine. Thanks to the generous support of The LAM Foundation, the Crissey family and the Hagins Family Matching Gift Program, this endowed professorship will ensure permanent support for a clinical scientist focused on the rare progressive lung disease called lymphangioleiomyomatosis, or LAM.

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